Three is a magic number

Lately I’ve been thinking a lot about math. More specifically, why I hate math.

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Posted in Personal Stuff, Rants

Sometimes I wish I could draw

Because then I would write a graphic novel about cancer, and unfortunately, the stick figure market is already cornered. Despite all of the cancer publications out there, a web comic or graphic novel are not among them. Maybe because people think it’s too depressing? But it can be so hilarious…

I was the kid who forced my mom to sit with me for hours while I “dictated” to her before I could write myself. So clearly, I need to continue this trend.

Posted in Uncategorized

Good news

A few weeks ago I drove myself to Dana-Farber (which is a fairly horrifying drive if you’re not used to driving in the heart of Boston) to meet with Dr. Arnie Freedman, the head of the lymphoma department and also a fellow alumnus of my alma mater. After a fairly harrowing trip into the worst parking garage I have ever encountered, I emerged on the Carl and Ruth Shapiro floor (if you know me well, you know why this is pretty hilarious) and waited. Well, first I got weighted, which was horrifying, and then went back to waiting.

Dana-Farber sign

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Posted in Personal Stuff, Survivorship

Say hello to my little friend

We have a tenuous relationship. I’m glad to have him around but he’s the type of friend who tags along but isn’t someone you really get along with. Yes, he’s my disability placard.

Oh look, you can see my horrendous license picture that I got a week after getting all my hair chopped off.

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Posted in Personal Stuff

Pinksplosion

Unless you’ve been in a cave for the past 2 weeks, you know that October is Breast Cancer Awareness Month. That means everything is plastered with pink – from radio commercials to my favorite restaurant to just about every general cancer organization ever. The Susan G. Komen Fund does an exceptional job of marketing breast cancer awareness, as is seen by the fundraising efforts toward breast cancer. But September was lymphoma month (as well as children’s cancer awareness) and there was no “greenwashing”, no ribbons, no mention of the disease despite the fact that it’s one of the most diagnosed groups of cancers for young adults.

Now, on one hand, every dollar donated to any cancer fund is helpful to eradicating the disease in all forms. On the other, the focus on breast cancer is so strong that it negatively influences the services provided for others with cancer.

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Posted in Rants

On why I haven’t gone to the doctor

We left off somewhere with the ultimate cliffhanger: my “good” PET scan was not clean and OMG is it still cancer? Tune in for next week’s episode.

Next week came and went. And then another week. And another week.

My plan is to seek a second opinion from a Hodgkin’s specialist at Dana Farber. My surgeon and radiologist didn’t seem nearly as concerned as my oncologist, which makes me feel a little better, but even more confused about next steps. There is just so much research and scheduling to do in order to pick the right doctor (and not just pick the lymphoma specialist who went to my alma mater because that means I trust him more), make sure my records are all transferred (or not? I don’t understand Partners), schedule an appointment, get the guts to drive to Dana Farber, yadda yadda yadda.

I’m just exhausted of all of this cancer shit. Until you have gone through it, you cannot imagine how mentally exhausting it is to deal with the whole back-end of cancer. Yes, chemo and surgeries are crap. All of the scheduling and decision making? About 1000 times worse. Pile on a full time job, school, volunteering, and trying to have a semblance of a social life and it just seems impossible.

It will happen. For right now, I just need to live in the moment. I know many of you have been asking about what’s going on and that’s just the best answer I can give you.

Posted in Personal Stuff, Survivorship

Occupy… what?

Occupy Boston camp at Dewey Square

People keep asking me what I think of Occupy Wall Street and, by proxy, Occupy Boston. After all, I seem like the perfect fit in the movement: politically engaged, a history of political organizing and activism, and a story that fits right into the party line. Except, I don’t know what the party line is.

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Posted in News, Rants

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