Apparently I fall under the “nerve damage” category of chemo patients. Most of my side effects after the first treatment have been nerve related. Have I mentioned that I’m a total wimp for pain?
The day after chemo, I felt out of it, but mostly fine. I didn’t feel like eating much and if I smelled my roommate’s usually delicious smelling cooking, I’d get a bit gaggy but nothing that my meds couldn’t handle.
The Sunday after chemo I was exhausted. If I had a choice of laying in bed dozing and getting up to get a drink/eat something/walk around, I was choosing bed. Big mistake.
Monday in the wee hours, I woke up with intense pain radiating through my jaw and teeth. It felt like every tooth needed a root canal (I say this never having had a root canal). Beyond this pain, I felt like I had been hit by a truck: tired, sore, overall craptastic. Turns out, if you don’t eat or drink much, you get dehydrated. If you don’t exercise in 3 days any further than dragging your butt from your bed to the bathroom next door, you get really sore. Now I know to recalibrate my expectations for my physical activity level for next time. No matter how bad I feel, I’ve made a pact with myself to at least get out of bed and walk around the block. I might only walk for 10 minutes, but I think it’s necessary to not feel SO bad.
I’m now 9 days into Cycle 1. The jaw pain finally subsided but over the past few days, I’ve developed numb fingers. Peripheral neuropathy is a normal reaction to the chemo. It’s just weird to not be able to really feel the keys as I type, and tying shoelaces? Hard.
One of the weirder reactions that my NP seemed a little perplexed by is my knees. It feels like I have run a few miles when I walk up or down stairs. And it’s not as if my legs feel sore… it just feels weak. So excuse me if I walk up stairs like I’m an 80 year old – I’m actually legitimately concerned about falling!
On things I can no longer do anymore: stand on the T. It will be easier once my hair is gone because then I won’t seem like a crazy person asking people to let me sit. Trying to stand the other day made me flop all over the place. 😦